Update on Cameron 3 days post treatment -
He is really enjoying being at the cottage, the sea air is so good for recuperation, he has been playing a little with his friends, short bursts of activity is the key. He remains on regular pain relief for his limbs & throat, he was crying with his throat, dear love him. But has got up to play pool at the golf club a few times which has been great. Thank you Michael Jervis for supervising that activity! We have had tremendous support from the club in helping with fundraising, for which we are very grateful.
Unfortunately we will be heading to the doctors surgery tomorrow as his throat is very bad and he needs a throat swab and blood test to see if there is more strep!!!! Trying not to think that far! He needs his strep titres checked anyhow as 5/6 weeks post positive result for strep is when they are at their highest, which in turn means the antibodies would be at the most vicious in the brain. We are hopeful that putting him through the plasmapheresis sooner rather than later was able to stop/reduce the antibodies in the tracks. However this is still very new treatment over here for Cameron's condition and is classed by neurology as experimental, they haven't experience in using this for Cameron's condition so they aren't exactly sure how he will respond to it.
Taking it one day at a time for now, and today is a good day , he's having fun, he's quite stable today and that's enough for now.