The magic brain serum on its way to Copenhagen!
I was looking for your email address to write to you privately.
Firstly, I'm so sorry what Cameron, you and your family have been through. I understand. More than you know. I was diagnosed in the states with adult PANDAS. (Imagine getting doctors in Australia to buy that!).
I know Cameron has had plasmapherisis - but I also know that's a short term solution. Have you looked into IVIg. Some children have it once a month for a year. There's different schedules of course.
Please don't take offence to this comment - I just want to share my experience- when I took the meds prescribed. My symptoms went through the roof. Pain, contortions, grimacing.
IVIg, mindfulness and change in diet were the only things that supported me. As well as the brain balancing exercises.
Probiotics are key - but they HAVE to be specific to the gut flora. So a fecal test is important. the meds may have really messed with cameron's microbiome. Which intensifies the neurological symptoms.
Here is my blog post about PANDAS.
If you get a chance please read my ebook- it's free.
more healing solutions.
Also look into Cerebrum Health Centre in Dallas. I'm not an affiliate. I just know the work they do. And I know how the helped me.
If you need any help. Please let me know: firstname.lastname@example.org
I hope you don't take offence to my suggestions. I am writing because my heart broke watching the documentary. And I know Cameron can heal.
My son has pandas and social services were involved as his school didn't believe us I would love to talk with you and try and set up other pandas info sits.
Of course, feel free to email us on email@example.com
Write something about yourself. No need to be fancy, just an overview.