Friday was his second day of plasmapheresis, he did very well however it's certainly starting to take effect, he's wiped out! It can make you chronically tired and just need to sleep, and with Cameron suffering from fatigue in the first place you can imagine how tired he is!
Heather gave him a demonstration on how the heat sealer works, they use that to seal off all the tubing after treatment.
After his central line is cleaned & sealed until Tuesday when treatment resumes. He needs the break to recover from the first 2, firstly it takes a lot out of him, but if they were too give it consecutively it could eradicate the clotting factors in his blood which would be very dangerous. So we are sitting tight in hospital till Tuesday. It's giving him the chance to rest & recover from the first two treatments and also keeps the central line nice & safe!
We are hopeful the third and fourth treatments will be Tuesday and Wednesday, then we will hopefully get a slot in theatre on Thursday to get the line out and get home!
We would love to make it down to the cottage for Easter, even if only for a couple days as we are off to Dublin easter Wednesday for a consultation with a new doctor who attended the conference last October and now treats PANDAS children :-)