This is the draft poster I have designed for fundraising events. Plenty of space for listing details, times & place of upcoming events. If you are planning an event, , contact me and we can facilitate you with some posters. We will have a short video coming soon that can be played at events as well, giving a little more detail of Cameron's story.
2 Comments
jody wannemacher
4/2/2015 10:15:39 am
My mother stumbled upon your story on u.tv and shared it with me. Reading your story is like going back in time. Your son reminds me almost exactly of mine 2 1/2 years ago. Kannen started with tics, then the speech, then the writing and academic abilities, social anxiety, finger sucking, regression, etc, etc, etc (too many symptoms to post)... then finally unable to walk due to elevated antibodies levels on his spine. We did multiple abx trials, steroids, and finally 2 rounds of IVIG when he finally started to pull out of it. We went from having a perfectly normal active 11 year old to a child that wasn't even "there" (I would look in his eyes and feel like I was staring at a child that no longer existed) to now a perfectly normal child again. We have mild set backs when exposed to illness (mild nasal and throat tics but nothing compared to where we were)! No medications in over a year!!!!! There is hope! It took time, faith and lots of courage and patience- but we made it- and you will too! Hugs to you all!!!!!!
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Jody Wannemacher
4/2/2015 10:19:11 am
Sorry- this was meant to go under his plasmapheresis post :)
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