It's been a very tough 24 hours, our PANDA is in a bad flare. Aw man this illness is so intense and exhausting! - the tears, the sobs, the pain and confusion in his eyes at trying to deal with everyday life sometimes......he spent hours distressed & crying last night and is no better this morning.
Even nearly 2 years into it that's something that still gets me, because I can't take that pain away....
I've found it hard to keep my head above water lately. When he's in a flare like this EVERYTHING is so hard for him. His surgery date is confirmed and it's very imminent, however we haven't been able to tell him yet so we are keeping it off the blog in case he finds out as that would be disastrous, he's very very anxious & frightened about it all. Stay tuned for a full blog update next week.