So heading to bed after a quiet day in the hotel, before another day of doctors & bloods tomorrow. He really isn't keen to leave the safety of the hotel at all, last night was 4th July celebrations and mum & I sat in the room watching the fireworks on TV sharing a room service salad while he slept.
I felt sad today, there was a very endearing, but severely autistic boy at the pool with his parents, he was 15 years old and was just finding his voice and trying to talk. He loved Cameron's ball and Cameron and kept wanting to play with him, he came over to our sun bed and sat down beside him. Cameron got very upset & annoyed & called him a freak. When Jonny and his dad left Cameron got very very angry with us, "why did we let him sit on his towel and on his bed?", I tried to explain that we were just trying to be kind and empathetic To Jonny and his dad, but he was not buying it at all...... I was so terribly saddened because before he took ill my boy would have been full of empathy, kindness & love for Jonny, and had all the time & patience in the world for him, but that boy was nowhere to be seen at the pool today..........it's so heartbreaking to know that I can't take away this debilitating fear of life he has now............