Hospital update Cameron is on the emergency theatre list for the morning, he has to get a double lumen Hickman line in, the surgeon will decide where it will be located but potentially in his neck. This is needed for the plasmapheresis treatment he's scheduled for this week. The renal team from the city hospital come over to the children's hospital to administer this treatment. Basically his blood is removed through the line, the plasma is extracted and cleaned while a plasma substitute is put back in. Once the plasma is cleaned (the attacking antibodies are hopefully removed at this point) it is put back in to his body. He will be in for 10 days for this and is scheduled to have 4 blasts of treatment over the 10 days. We may get some 'home leave' in between blasts. However this all depends on IF there is s BED for him to go to after theatre!!! I will hopefully find out at 8am in the morning, the bed manager was contacted this afternoon but it all depends on how many admissions they have from A & E tonight. If he misses his slot in theatre in the morning due to no bed being available there are no more slots this week and it's back to the drawing board, and potentially doing the treatment through a series of cannulas in his arms, however this would be much more distressing for him so please pray we make our slot in theatre tomorrow morning!! We really need to start treatment this week, it's now over 3 weeks from the positive strep result and that's 3 weeks that the antibodies have been running loose round his brain attacking whatever they fancy!! This is a much more invasive procedure than he has had previously, it will be scary & tough for him, so keep us in your prayers. Off to pack our cases now! Nite nite. Natasha xx
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December 2015
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